Then I got busy, learning, researching, networking, and figuring out what I had to do to keep him strong, happy and healthy for as long as possible.
I am thrilled to say that he is doing really well. He gets around really good, is doing good in school, has great friends and loves him family.
It is more important than ever to find a cure or atleast stop the progression. A day or minute never goes by that I don't pray for that miracle or atleast think about it. It's the elephant that never leaves the room.
Please keep these boys in your prayers always....Thank you.
http://www.parentprojectmd.org/site/PageServer?pagename=nws_index
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